Description

International Albinism Awareness Day is observed every year on June 13 to increase global understanding of the rights, challenges, and experiences of individuals with albinism. Recognized by the United Nations, the day focuses on fighting myths, stereotypes, and discrimination associated with this rare genetic condition. It also emphasizes the need for equal access to healthcare, education, and protection.

June 13, 2025, marks the 11th annual observance of International Albinism Awareness Day. This year continues the push to highlight human rights issues and promote social inclusion for people with albinism, while reinforcing calls to end violence and marginalization worldwide.

Historical Background

• 2013: The UN Human Rights Council adopted a resolution addressing violence and discrimination faced by persons with albinism.

• 2014: The UN General Assembly officially designated June 13 as International Albinism Awareness Day.

• 2015: The first global observance was held to promote awareness and support.

Purpose Of Observance

• Raise awareness of the discrimination and harmful practices targeted at people with albinism

• Advocate for better access to healthcare, education, and legal protection

• Celebrate human diversity and affirm the dignity and rights of those affected

Understanding Albinism

Definition: Albinism is a rare, inherited genetic condition that leads to little or no production of melanin, the pigment responsible for the color of skin, hair, and eyes.

Causes

• Caused by mutations in specific genes such as OCA (Oculocutaneous Albinism) and OA (Ocular Albinism)

• It is a non-contagious, autosomal recessive disorder

Occurrence

• Can affect individuals of any race or ethnic background

• Those with albinism often experience vision problems and heightened sun sensitivity

Types Of Albinism

Common Characteristics

• Very light skin and hair tone

• Sensitivity to sunlight (sunburn risk)

• Visual impairments such as: Nystagmus (involuntary eye movement), Photophobia (light sensitivity), Strabismus (misaligned eyes), Low vision or partial blindness

Inheritance Pattern

Albinism is passed down in an autosomal recessive manner. When both parents carry the gene mutation, there is a 25% chance with each pregnancy that the child will inherit the condition.

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