CURRENT AFFAIRS
CURRENT AFFAIRS
Description
Several patients with rare diseases across India, including many children, are facing critical challenges due to delays in the implementation of the National Policy for Rare Diseases (NPRD) 2021, according to patient advocacy groups.
About National Policy For Rare Diseases (NPRD) 2021
The Ministry of Health & Family Welfare introduced the National Policy for Rare Diseases (NPRD) in March 2021. As of now, 63 rare diseases are included under this policy, based on recommendations from the Central Technical Committee for Rare Diseases (CTCRD).
Key Features Of NPRD 2021
Disease Categorization - Rare diseases have been divided into three groups:
Group 1 - Disorders treatable with a one-time curative approach.
Group 2 - Diseases that require long-term or lifelong treatment, but are less costly.
Group 3 - Diseases that have available treatments, but challenges exist in selecting the right patients, high costs, and lifelong therapy.
Financial Support - Financial assistance of up to Rupees 50 lakhs per patient is available for treatment at designated Centres of Excellence (CoEs) for Rare Diseases.
Centres of Excellence (CoEs) - So far, 12 CoEs, which are leading government hospitals equipped for the diagnosis, treatment, and prevention of rare diseases, have been identified. Patient treatment begins immediately after registration with these CoEs.
Nidan Kendras - These centers have been set up to provide genetic testing and counseling services.
Tax Exemptions - The Ministry has secured exemptions from GST and Basic Customs Duty on drugs imported for individual use in rare disease treatments, through CoEs.
Research and Development - The Department of Health Research established the National Consortium for Research and Development on Therapeutics for Rare Diseases (NCRDTRD) to streamline research efforts. This includes promoting the development and production of drugs for rare diseases in India, encouraging indigenous manufacturing at affordable prices, and enhancing research on diagnostics and treatments.
Welcome to Notopedia.com, your free learning platform that caters to the diverse needs of students and aspirants across a spectrum of entrance exams and educational endeavors. Whether you're preparing for highly anticipated exams like CAT 2023, NEET 2023, JEE Main, or bank job vacancies, our platform offers a wealth of resources to guide you towards success. Stay up-to-date with the latest exam dates, announcements, and results for various government recruitment exams, including SSC CGL, CHSL, NDA, and UPSC. Explore comprehensive study materials, sample papers, and exam patterns to hone your skills and boost your confidence. From important dates like CBSE Class 10 and 12 date sheets to exam-specific information like JEE Main 2023 application form date, we cover it all. Notopedia.com is your go-to source for everything from admissions and admit cards to scholarships and college information. Whether you're aiming for a career in defense, government, banking, or higher education, our free learning platform equips you with the knowledge and resources you need to excel. Join us in your educational journey and unlock a world of opportunities, guidance, and comprehensive support.
For more Updates and Information - Visit Notopedia's Bulletin Board
For Latest Sarkari Jobs - Visit Notopedia's Sarkari Jobs Section
For access to more than 20,000 Colleges - Visit Notopedia's College Section
For School Studies and Exams Preparation across 14 Boards - Visit Notopedia's School Section
For Comprehensive Preparation of Sarkari Job Exams - Visit Notopedia's Sarkari Exams Section
